A few days ago, I saw a post on r/fibromyalgia with a list of symptoms related to fibromyalgia, both common and uncommon. As I was looking at them, I couldn't tell what was scaring me the most: the size of the list or the fact that I have a lot of them.
I don't know what the fuck is going on, but my sleep quality, which was already bad, has decreased dramatically over the last weeks. I can sleep, but I have a very light sleep and wake up much more tired than I used to. Somedays, I feel so exhausted and dizzy that it takes me over an hour to get out of bed, and even then, I stumble on everything during the first hour or two after getting up. I can't even go down the stairs without grabbing the railing to avoid falling.
I have fibromyalgia, a hell that began almost four years ago. During the first two years, more or less, I read a lot of studies. Still, none got me genuinely excited. That is until a team in Sweden decided to see if the syndrome has an autoimmune origin. The first part of their investigation points to that, and there was subsequent Research from another team that also showed solid evidence of this hypothesis being correct. The second part of the Swede's is still pending.
As far as I know, that's it for Research. A team or even two might be doing work around fibromyalgia, but publishing it will probably take a while. Even after that, assuming the identification of the syndrome's origin and the development of an effective treatment, it will take even more time to adjust the current shitty therapies available that fail miserably at keeping the pain at bay or at least at non-hellish levels.
Every day, the hope of getting access to an effective treatment for fibromyalgia during my lifetime fades away, little by little.
One of the things fibromyalgia brought me is an increasing sensibility to noise. Things have become so bad that I get massive headaches, worse than the ones sinusitis presents me with. Of course, with them, I also get photosensitivity and an urge to vomit. If this shit continues, I'll have to stay at home during the holidays and birthdays.