Bruno Miguel

ChronicPain

I have fibromyalgia, a hell that began almost four years ago. During the first two years, more or less, I read a lot of studies. Still, none got me genuinely excited. That is until a team in Sweden decided to see if the syndrome has an autoimmune origin. The first part of their investigation points to that, and there was subsequent Research from another team that also showed solid evidence of this hypothesis being correct. The second part of the Swede's is still pending.

As far as I know, that's it for Research. A team or even two might be doing work around fibromyalgia, but publishing it will probably take a while. Even after that, assuming the identification of the syndrome's origin and the development of an effective treatment, it will take even more time to adjust the current shitty therapies available that fail miserably at keeping the pain at bay or at least at non-hellish levels.

Every day, the hope of getting access to an effective treatment for fibromyalgia during my lifetime fades away, little by little.

#Health #Fibromyalgia #ChronicPain #Research

I was watching Shiza's Twitch stream around an hour ago, and at some point, burnout came up in the conversation. This made me think about what I've been experiencing, and it's eerily similar to burnout, although it's not the same thing, and there's more to it.

You may know this as brain fog. Covid brought this issue to the spotlight. The difficulties concentrating and lack of mental energy are severe issues in chronic pain (and we now know that it also occurs with COVID-19), and they're hard to deal with. But, at least to me, the worst part of brain fog is the cognitive impairment.

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